May is Ehlers Danlos Awareness Month, and this year I am going to be sharing some insights into my life with EDS and how I live a full, joyful and active life with this long-term condition.
A question I am asked regularly by visitors to my blog is how I am able to be well while I am working full time, often long hours, and mostly at a computer screen throughout the day.
Living and working with Ehlers-Danlos Syndrome can seem like an uphill struggle at times, but there are some simple ways in which I think employers can support staff with EDS to be well at work. I'll explore a few of my thoughts on this in this article.
In the last few months I've had several people comment on how well I look, and how different that is to where I was even a year ago.
I'm probably physically and mentally the most well I've been in about a decade, but it's really easy to forget just how much work has gone into getting to this point, and how much work goes in to maintaining it.